Useful Links
Find out more about epilepsy and clinical research studies by visiting these websites.
Testing Treatments
This online book builds a lively and thought provoking argument for better, more reliable, more relevant research, with unbiased or 'fair' trials, and explains how patients can work with doctors to achieve this vital goal.
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American Epilepsy Outreach Foundation
The American Epilepsy Outreach Foundation works to raise awareness of epilepsy through advocacy and education, and by supporting people with epilepsy and their families and friends.
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Center for Information and Study on Clinical Research Participation
This non-profit organization helps to teach and inform people (patients, members of the public, medical/research communities, the media, and policy makers) about clinical research participation.
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Citizens United for Research in Epilepsy (CURE)
This volunteer-based non-profit organization was founded by parents of children with epilepsy. It is dedicated to find a cure for epilepsy by raising funds for research and increasing awareness of epilepsy. The site provides news and information about epilepsy along with on-going community activities.
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Coping with Epilepsy
This free online forum lets people with epilepsy and people who live with or care for people with epilepsy discuss epilepsy, seizures, medications, treatments, and all aspects of living and coping with epilepsy.
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eHealth Forum: Epilepsy
eHealth Forum is a health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions.
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Epilepsy Therapy Project
Epilepsy Therapy Project is a not-for-profit corporation that works to speed ideas into therapies for people living with epilepsy and seizures.
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Epilepsy Foundation of America
Epilepsy Foundation of America® is the agency dedicated to helping people with epilepsy in the U.S.
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International Bureau of Epilepsy
The International Bureau of Epilepsy works with people around the globe to address social problems such as education, employment, insurance, driving license restrictions, and public awareness. The site provides news and information about epilepsy along with on-going community activities.
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Mayo Clinic: Epilepsy
Mayo Clinic is a world leader in developing treatments for epilepsy. The website offers educational resources, such as information about potential treatment options for those who have epilepsy as well as new developments in treatment options.
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National Institutes of Health
The National Institutes of Health (NIH) is the main federal agency for conducting and supporting medical research.
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National Institute of Neurological Disorders and Stroke
The National Institute of Neurological Disorders and Stroke conducts and supports research on brain and nervous system disorders. It is part of the National Institutes of Health, the main federal agency for conducting and supporting medical research.
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Nemours Foundation Teens Health on Epilepsy
Targeted towards teenagers and parents, this website provides current, doctor-approved information for its viewers in an easy-to-understand manner that is free of 'doctor speak'. KidsHealth offers a safe, private place for teens and parents who need accurate advice and information. The site is operated by Nemours Center for Children's Health Media, a non-profit organization.
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PurpleDay
Motivated by her struggles with epilepsy, Cassidy Megan started PurpleDay when she was 9 years old, with the help of the Epilepsy Association of Nova Scotia. This website works to "get people talking about epilepsy in an effort to dispel myths and inform those with seizures that they are not alone."
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Talk About It
Talk About It takes you on a virtual train ride through the many questions you have about epilepsy. This is an interactive site that features dozens of celebrities who are on a mission to get rid of the social stigma about epilepsy. The first step in changing perceptions about epilepsy and promoting understanding and acceptance? Talk about it.
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WebMD Epilepsy Health Center
WebMD is a complete glossary of information about various diseases and disorders, including epilepsy. WebMD provides a comprehensive health center that will answer many questions about epilepsy, its causes, and treatment options. Support is available via the online community, where people with epilepsy come together to talk about their experience and to offer support and advice to other people with epilepsy.
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